‘Project Punarvika’ to support children with rare diseases

Education Minister Nara Lokesh on Sunday announced ‘Punarvika Project’, a comprehensive initiative aimed at improving access to treatment for children suffering from rare genetic diseases.

The announcement was inspired by the case of an 11-month-old Punarvika child who recently received a life-saving injection worth ₹16 crore. Describing it as one of the most emotional moments of his life, Lokesh said that the case highlighted both the possibilities of modern medicine and the serious challenges posed by the high cost of treatment.

The Minister noted that rare diseases affect a small number of children individually, but collectively affect thousands of children across India. Dr., whose expertise helped draw attention to the issue. He accepted the role of Ramesh Konaki.

‘Project Punarvika’ will focus on policy advocacy with the central government, collaboration with global pharmaceutical companies to reduce treatment costs, and partnerships with Indian manufacturers and medical experts to explore affordable, scalable solutions. It also aims to raise awareness and provide stronger support systems for affected families.

Emphasizing the need for systemic change, Lokesh said this initiative is a commitment to ensure that no child’s future depends on their family’s ability to afford expensive treatments.