Parents battle charity for £100k donations to dead son to be spent on terminally ill daughter
Parents who lost their nine -year -old sons to cancer – only learning their little sister is a deadly patient – initially forgive more than £ 100,000 in a charity war.
LEGO-LOving Kyle Morrison died after diagnosis of an untreated brain cancer in 2020 and left behind his parents Craig Evison and Victoria Morrison.
Before his death, Wellwishers had made thousands of donations for treatment in the United States, and the “memory -making” experiences for the family intervened, but Covid intervened and never traveled.
The couple now continued to Ruby-Rose, a two-year-old daughter, but was ruined to find out that she was seriously ill in a genetic metabolic illness and that it was not likely to live beyond this summer.
Later, they launched a Gofundme page under the name of “Ruby -Rose’s Construction Memories Fund” to take him to Disney in Florida to meet his beloved Minnie Mouse.
But when they tried to claim that he was about £ 100,000 from the money donated for Kyle, they were told to be not paid – because Ruby -Rose is not a different but destructive situation, not cancer.
Cheshunt, Herts, parents, in the high court, money should be spent to benefit the little girls of money, saying that the money, gold geese are fighting the philanthropist.
However, he says he cannot pay the charity, because donations were made for Kyle when he was a cancer patient, and now he can only be spent on trials or another child in a “similar” situation.
At the hearing that lasted a day, Deputy Judge Marc Glover told Kyle in 2019 when Kyle was a rare cancer – widespread internal pontin glioma (DPIG) – how it was diagnosed.
Attempts to collect money for treatment and help to make the most of their days began with a Facebook campaign through One Pound Warriors Group, which encourages donors to give small but regular totals to charitable reasons.
However, the group later transferred to Essex -based gold geese, a charity that works for the benefit of children of Kyle’s cancer.
The money was inundated and Kyle was going to the US for treatment at the end of 2020, but Covid prevented his trip and was very sick when time restrictions were alleviated.
He died in October of that year.
The couple, who had another son, then continued their daughters Ruby-Rose in 2022, but he was diagnosed with a destructive disease known as Megdel syndrome, a genetic metabolic condition characterized by the high acid levels in the early infantood body.
The couple, who represented them, said the judge was low likely to live beyond this summer, but he continued to fight his illness.
Mrs. Morrison said: “We just want the money to do as much memories as possible.”
However, for the charity, Barrister William Moffett said that money can only be used for purposes by children with cancer.
And a contract accepted by the couple said that if the money had not been spent on the treatment of his sons before he died, he would go to another DIPG case or a child in a “similar” position.
However, he said that there is no way for donors to benefit Ruby-Rose, because because he was not born at the time of his commitment.
“The disease and the desire to help this family could not inform the donors while giving it in 2020.”
“Golden geese are a cancer aid organization, on the logo.
“There are other charity institutions that will involve the help of someone with the state of Ruby-Rose, but for gold geese, it is not appropriate to deviate from child cancer.
“Philanthropy is trying to do what they have to do legally for their purposes.
“If the court had to tell us otherwise, they would have authorities, but we don’t think it was the right answer here.
“It is an unfortunate fact that Mr. Evison and Mrs. Morrison have a child with a different disease.”
However, the couple insisted that the contract allowed Ruby-Rose to be spent for the benefit of Ruby-Rose, because they believe that as stated in the agreement, they have made a “similar” case definition.
And even though they accepted the contract, their little daughters said that the situation has changed when a diagnosis of a disease that limits life.
“This is a mother and a father with a heart, Mr. Mr Evison said.
“We have been five years now. Things have changed completely. The world has changed harshly.
“We couldn’t imagine what would happen, we are human beings. Unfortunately, Kyle has passed. His sister Ruby-Rose is extremely rare and very similar.
“If he does another [month]He exceeded the hospital’s expectation. We try to have the chance to do these memories when there is still time and we can do physically. “
He also said that he continued to encourage the cause of childhood cancer and that they wanted any of the donors to continue to investigate their money, and that the couple would not object.
On a discussion of a video connection, he described Judge Mr. Evison and Mrs. Morrison as a “brave family” with devastating bad luck.
However, he added: “Part of the court function is to determine the intention of donors. The numbers are great. There are at least 1,300 different taxpayers.
He continued: “Did your son go to a charity for people other than Kyle, or should he go to Kyle?
The decision that the money can be spent on Ruby-Rose will be delivered at a later date.
