Jesy Nelson reveals twin daughters, 9 months, are being treated at Great Ormond Street Hospital as she shares heartbreaking picture of their matching leg splints amid their ongoing treatment for SMA

Jesy Nelson has shared new photos of her twin daughters being treated by doctors while wearing splints at Great Ormond Street Hospital.

The former Little Mix singer, 34, revealed to Ocean and Story in January that she had been diagnosed with Spinal Muscular Atrophy (SMA), a genetic neuromuscular disease that weakens muscles by affecting motor nerve cells in the spinal cord.

The most severe form, Type 1, may have a life expectancy of less than two years without treatment.

Giving a new update to fans, Jesy shared adorable photos on social media of the twins being taken into the care of paramedics on Great Ormond Street.

The nine-month-old babies could be seen sharing a bed and wearing splints on their legs, wrapped in a blanket.

In another photo, Jesy joked about how every visit to the children’s hospital in London was an ‘educational experience’ and shared how crocodiles can live 30 to 50 years in the wild.

The little ones sharing the same bed were seen wrapped in blankets with splints on their legs.

Her update came after an ’emotional day’ on Wednesday, when she visited a Scottish laboratory that was the first to test for her twins’ rare condition.

Sharing a photo of herself with medical staff from the hospital, she wrote: ‘An emotional day visiting the neonatal blood spot screening laboratory for SMA in Scotland.’

All babies born in Scotland will now be tested as part of a two-year pilot programme.

Earlier this week, after it was announced that Scotland would be the first region in the UK to introduce the test, Jesy shared an Instagram story labeling the news as ‘bittersweet’ as the screening could make her daughters’ lives look ‘very different’.

Giles Lomax, chief executive of the charity SMA UK, said the screening pilot in Scotland would be ‘a huge impetus for other parts of the UK to step up their own testing plans’. He said: ‘Four more babies are being diagnosed with SMA every month and the clock is always ticking…

‘With all three treatments now routinely available through NHS Scotland, alongside newborn screening, the future of anyone diagnosed with SMA is very different to that of their symptomatically diagnosed peers…

‘It basically gives kids the life they deserve.’

Despite her devastating prediction that their nine-month-old daughter would not live past the age of two, Jesy revealed she decided to continue filming the Prime Video series as she struggled to ‘make a change’ despite the tragic news.

In the Q&A he said: ‘I hope people continue to follow the next part of the journey. When the girls received their diagnosis, we decided we wanted to continue shooting.

‘As hard as it was, we said, ‘You know what? ‘You’re here for a reason and we need to make the most of the situation.’

Since going public with her diagnoses, Jesy has campaigned for SMA1 screening at birth on the NHS.

Amid her health struggle, Jesy split from fiancé Zion Foster, the father of her twins.

She broke down in tears last month when her petition surpassed 100,000 signatures; this meant that the petition now had to be debated by MPs in the House of Commons.

He said at the time: ‘Words cannot express how grateful I am that this moment happened right here! And it’s all thanks to you.

‘Thank you to everyone who took the time to sign this petition. You have no idea how important this is to me and the SMA community. This is the first hurdle but we did it and I truly believe we will create change together!’

As he continues to campaign, last month he officially announced he was patron of the charity SMA UK.

He said he was ‘deeply touched’ by being involved with the charity and stressed he would continue to raise awareness for the test to be introduced into newborn screening.

Sharing a picture of her patronage certificate, she wrote in February: ‘Today I’m incredibly proud to share that I have officially become patron of SMA UK.

‘This really means a lot to me. I am deeply touched by the SMA community, the strength of children, the resilience of families, and the love that surrounds them every day.

‘I will use my voice not just for my daughters, but to support families going through the same experiences, and campaign for the SMA test to be added to the newborn screening heel prick test so more babies can get the help they need as quickly as possible.’

He continued: ‘The link to my supporter page is now in my bio and stories. Absolutely anything makes a difference. Any support, donation, sharing, chat… every action helps increase awareness and hope.

‘If you would like to donate you can donate £5 by texting JESY5 to 70470.’

Jesy previously told the Daily Mail that the medical procedures her babies have to endure every day feel like they’re harming them as they cry and scream.

She described caring for twins as an emotional rollercoaster; some days were ‘really awful’ and some days were a little lighter.

Jesy and her ex-partner Zion never expected to care for their baby in the way they did, and Jesy says meeting their medical needs is a daily struggle.

He said: ‘Every day is so full, I could talk about it but I’ll never be able to explain how intense it is until you see it.

The former Little Mix singer, 34, announced in January that Ocean and Story were diagnosed with Spinal Muscular Atrophy (SMA), a genetic neuromuscular disease that weakens muscles by affecting motor nerve cells in the spinal cord.

Jesy shares Ocean and Story with ex-fiancé Zion Foster

Speaking to Jamie Laing on the Great Company podcast, Jesy said she was hopeful her babies would defy the odds now that they are receiving treatment and have a longer life expectancy.

He explained: ‘So spinal muscular atrophy is a disease that causes muscle wasting, so they don’t have a gene that we all have in our bodies.

‘His muscles are now worn out and wasted; If not treated in time, eventually all of the muscles will die, affecting breathing, swallowing, everything. And they will die before they are two years old.

‘It’s okay, but it is what it is and I have to accept it and now I’m trying to make the best of it… And my girls are the strongest, toughest babies and I truly believe they will defy all odds.’

Jesy, who is taking care of her daughters, has previously said her music career is on hold for now.

Appearing on Heart FM’s Breakfast programme, Jesy told Amanda Holden and Jamie Theakston that her focus is now solely on the twins.

He explained: ‘Look listen I would never say never never to music but for me my girls are my main focus, I’ll be honest with you, I don’t have time, I really don’t.

‘They are my whole heart, soul and main focus and I want to continue to advocate for them and change this heel blood test and empower them, that’s my main focus.

Because this will determine their future. That’s my main focus right now.’