Could these twins’ rare genetic disorder provide the key to preventing cancer?

There is hope for those born with Laron with the drug Increlex.
The drug, which was first developed 15 years ago, can cause height increase when applied during growth spurts.
However, access to medicine can be difficult and has some limitations; It can only be given to children between the ages of 2 and 18, and in some cases it can have serious side effects.
Because it is produced by only one pharmaceutical company, it can cost more than $800 (£600) per vial. Dr. Guevara explains that a child with Laron syndrome needs at least three bottles a month, which costs $2,400.
One of those who had difficulty obtaining the drugs is Mayra Loaiza.
Her 2-year-old daughter Camila was supposed to start treatment 6 months ago, but she has not yet received her first dose.
Mayra, who also lives in Piñas, worries how this will affect Camila’s growth.
“I want my daughter to live as normal a life as possible. I don’t want her to be discriminated against because of her size,” he says, adding that he is confident the drug will make Camila taller.
40-year-old twin sisters María Luisa and María del Cisne are among those who missed the opportunity to buy drugs.
While they wonder how different their lives would be if they had this opportunity in their youth, they say they have learned to live with their short stature.
“We now accept ourselves as we are, but treatment could have saved us a lot of heartache,” says María Luisa.
“I accepted myself as I am, I accept myself and I thank God for who I am.”




